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Post Mastectomy Pain Syndrome

Breast Cancer | Last Active: Jan 23, 2019 | Replies (30)

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@cindylb

Curious...........I had a bi lateral mastectomy and only sentinel node removal going on 3 years ago now. I had no radiation. I have some twinges of pain off and on, nothing serious. The pain is primarily in my axilla area. Wonder if the pain people experience might be more from the radiation? I had a second surgery to my chest wall to remove additional tissue left behind from the original surgery. That surgery has caused me more problems (but pretty much eliminated my lymphedema, which is great). The problems I experience now are the off and on twinges of pain and itching on my chest wall as well as an odd rash (going on 2 years now).

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Replies to "Curious...........I had a bi lateral mastectomy and only sentinel node removal going on 3 years ago..."

@cindylb I was reading through this post to see if anyone mentioned itching. I had a bilateral mastectomy 11 months ago with no reconstruction. I have healed nicely. I had 23 nodes removed so range of motion was an issue but PT helped. However. I continue to have intense, deep itching sensation in my chest particularly when I am laying down. Doctor and surgeon have no explanation for it other than healing nerves. Id love to know if others experience this and if anyone has any techniques for dealing with this.