@janeb Hi Jane, have you had a chance to read over @katemn's posts? There are many helpful things in her posts. It would take me all day to type out what I know about NTM/MAC. I am afraid you will need to do a lot of research on this disease. I will look and see if I can find the links again to some helpful sites. Try typing in NTM conference and see what you find.

@janeb, Jane, I am sorry, I should have asked how savvy you are on the computer to do research, and also, if you have the energy to do it. I keep forgetting that some people may be pretty sick and are just not up to the challenge. Your first concern needs to be, are you going to the right doctor to handle this disease? I went for 15 years with not so great private practice doctors; and did not get proper care and treatment. As a result, I have lost 60% of my lung tissue.