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MAI bronchiactasis

MAC & Bronchiectasis | Last Active: Oct 4, 2017 | Replies (24)

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@tdrell

janeb....l had a cough and mucus every evening for two years from 5-9pm.after much investigation a bronchoscopy done...sample taken and grown revealed l had MAC....refused local dr prescriptions of the big three...had already thanks to this site known l had to go to specialists.....went to National Jewish Health in Denver this past January 2017 where l was told that ...based on results of 3 sputum cultures grown in the gold standard for NTM way...and a low dose chest CAT scan read by a radiologist certified in reading chest CAT scans and an infectious disease DR and a pulmonlogist that l did not have active pulmonary infection..that the MAC found in lungs had been a result of aspiration into my lungs from my stomach....where the water l drank from Wisconsin pipes is full of NTM.....Hence my RX is geared to managing my gastric aspiration ( Gerd).
while there, they tested me for Asthma which l had been treated for past 30 years...and many thousands of dollars in inhalors etc...and found out l did not have it...also found out l am a carrier for an enzyme which might cause pulmonary issues to my children/children if they mate up with carriers. tdrell

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Replies to "janeb....l had a cough and mucus every evening for two years from 5-9pm.after much investigation a..."

@tdrell
Just wanted to chime in
I was wondering how do they check if you don't really have asthma. I have been diagnosed with asthma since I was a teenager.
If you don't have asthma what were you diagnosis with and do they treat it the same as asthma or is that part of the gerd. I haven't been checked for acid reflux yet and wonder if I may have it.
Thanks!
Shari
@ pfists

Pfists, I was diagnosed at age 43 as having non allergic asthma.it followed a severe viral respiratory infection. Diagnosis was based on symptoms...and positive responses to typical asthma meds...oral bronchial dilators.....inhalers.....it took a year of being on 3 different inhalers taken twice a day to get lungs "healed"
I needed no meds unless I got a cold....then you know what hit the fan and I had to be back on all the meds for 4-6 weeks.
Until I went to NJH, there was
Never a question that I had asthma.... but the "gold standard" for confirmation was done called the" Methocholine Challenge test"
8 syringes of increasing stronger doses of the chemical methocholine were given to me thru a nebulizer while I was hooked up to spirometer /computer.....the RT and Pulmonologist were surprised that I had NO changes to my breathing even with the 8th syringe of Methocholine.tdrell

@tdrell I had the exact same test at NJH with the same results. I was always told I had exercise induced asthma because as a runner, I would wheeze during while running during certain times of the year. I do wonder if the methocholine challenge tests for that? Questions. Always questions.

Here we go: The test is useful in the clinic to diagnose chronic asthma, but has a low sensitivity for the screening of EIA. The benefits of the test are that it is easily accessible, reproducible, not time-consuming, inexpensive and independent of special equipment such as treadmill and cycle ergometer. The disadvantages are that the test is laboratory-dependent and does not measure the outdoor environments stress which the athletes are exposed to during the exercise[6].

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3289196/

Jenblalock....what would we do without Dr Google for our research into the "why's??? tdrell

I would probably live at the library!