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Lennox-Gastaut syndrome (LGS) diagnosis

Epilepsy & Seizures | Last Active: Aug 8, 2020 | Replies (21)

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@jakedduck1

@pamelastewart5
Good evening Pam,
Hope all is well with you and your family.
I wanted to talk a little about you and acknowledge your importance as a caregiver. Obviously you play an intricate part in your Sons well being. I know that responsibility can be overwhelming. As a caregiver you need to be at the “Top of your game” so to speak, all the time. Honestly, I don’t understand how you manage it. Husbands, often other children, homes to maintain, meals to prepare, errands etc. etc. Just those things can be overwhelming, they are to me. However, your important too. Too often a carers wants and needs are ignored. Carers often deal with their situation alone and can feel very isolated. I hope you get the time necessary to yourself for your needs.
Those of us who have Epilepsy many times take carers for granted and they are not properly acknowledged or told how much we need and appreciated them. I am ashamed to admit I didn’t appreciate all that I put my parents through at the time. At 15 or 16 I had a breakdown and was quite destructive. I apparently couldn’t cope with seizure after seizure, comas feeding tubes etc. I tried to make it up to them and hope I succeeded. Anyway your a very special lady and I have such admiration and respect for you. Thank you, your appreciated more than you know.
God Bless you,
Jake

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Replies to "@pamelastewart5 Good evening Pam, Hope all is well with you and your family. I wanted to..."

Hello, Jake,
I think I addressed Leonard instead of you in the part of my recently-posted reply when I said that I believe you made your parents feel appreciated and loved when you made it up to them. Caring enough about them to try to do that would mean so much to them--and to any parent!