My name is Pam and my 40-year-old son has Lennoix-Gesault Syndrome, diagnosed ten years ago on the basis of his "disorganized" EEG. The seizures started just before he turned 3, on Memorial Day. We were told he'd be fine because he was completely normal developmentally and physically, and his EEG was normal. But that isn't the way things turned out. He slowly lost all his abilities and now he can't walk, talk, feed himself, stand without much help, or toilet. He lives at home and attends a wonderful day program. He still has a few seizures every week, when he is asleep. He started on medical marijuana about 18 months ago. The seizures hav lessened slightly and he can bear weight with assistance (he couldn't before). His other meds are Dilantin and Celontin. He's tried all the newer meds as they appeared, but either they didn't help or, with Felbamate, he had continuous diarrhea as a side-effect. His neurologist says he is very "medication-sensitive." He has been on the ketogenic diet and many other diets (Macrobiotic, gluten-free, dairy-free, etc.) We have also tried just about every alternative treatment over the years. I wonder if anyone else in this discussion group is in our situation?