Hello,
I was diagnosed with Hashimoto’s several years ago . My thyroid numbers are still normal however. Two years ago I was diagnosed with IGA Vasculitis an autoimmune an autoimmune disease which is extremely rare in adults. I have always had ( 30 years) autoimmune issues. I had been on Gabapentin for years but eventually went off as the constant burning and tingling all over my body seemed to get better,
In the last two years the episodes of burning and tingling have reoccurred, sometimes with a vengeance. I when through a full neurology evaluation at Mayo. As usual my results were all normal. I often wonder why Mayo did not follow with testing for small nerve fiber neuropathy which seems more like my symptoms so I may purse that.
They did suggest Lyrica however I was reluctant to do that again as I now take 2000 mg of mycophenolate mofetil per day and the episodes were more sparstic.
I am 5’6” weight 148 exercise daily , eat well and am a 72 year old female . Now… mu A1C is 5.7 so pre- diabetic. It is now more than confusing to determine what is causing these burning / tingling episodes. Getting back to the Hashimoto’s I have notice that when the burning starts it coincides with a raspy voice. I am guessing it is all an autoimmune flare.
I feel frustrated, tired and some days really miserable with no relief from the burning/ tingling through my body. I try to stay positive and remember I do have some stretches of time where I feel really good.
Autoimmune issues are so frustrating as there is often little that can be done, at least that is my experience and I have seen Doctors at Mayo for over 30 years.
If anyone has IGA Vasculitis I would be interested in hearing about your experience and treatment.
One day at a time, find the joy and beauty in the day, belief you are stronger than these pesky diseases and ask for God’s help, strength and peace.
Good luck to all!