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Replies to "looking for help, my son's best friend has been diagnosed with MALS.....apparently has suffered for months..."
@secondmom it is so hard to watch out kids, no matter how old, or extended family, to suffer. Do you think he is abusing the medication? I know for me, most medication didn't touch the pain, but there were meds that helped the nausea if he has that. Promethazine and Zofran help. Also there is a 'bracelet' band called reliefband. I personally haven't used it, but many have and love it. You just can't wear it all the time or it won't be effective. You can get that on Amazon. East very small meals, and slowly. Sometimes bringing your knees up to your chest help as well. I know it can be different for everyone. There is also another great support group called MALS PALS, it is a Face Book closed group. There is a lot of good info on there as well. Good luck.
@secondmom - what misery! Know the pain. It is best to eat SMALL frequent meals. Maybe try Ensure?