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Post-MALS surgery

Digestive Health | Last Active: Dec 10, 2023 | Replies (71)

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@kariulrich

Oh my goodness Jill!! I was passed the tilt test also, however I do have POTS and like you my BP was insanely high and pulse was all over also and I felt horrific with the tilt table, I passed because I did not pass out... I wonder about the validity. My hypertension doctor said definitely POTS. It seems so many have dysautonomia and MALS! I am sorry you are feeling so horrible, home hydration....OH MY! Let me know if the hydration helps. I was part of a study decades ago, and the researcher back then knew I had POTS, she told me don't be afraid of salt, it will be your friend for life. I will say I can tell when I am dehydrated because the POTS becomes unbearable. I am soooo excited for Robin, let keep our fingers crossed that the stent works! Jill I am so happy you post here, you are an awesome resource and a great support. Sending you gentle hugs.

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Replies to "Oh my goodness Jill!! I was passed the tilt test also, however I do have POTS..."

Thank you Kari. I didn't know you had POTS also. I just get so confused and like what is wrong with me!!! Sending you hugs as well. Oh yea, the hydration is starting to help. Hopefully it will continue!!