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Stiff Heart

Heart & Blood Health | Last Active: Jul 18, 2023 | Replies (27)

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@hopeful33250

Hello @brittalisse,

I remember us discussing your mom's breathing problems in our Parkinson's discussion group. I also have a Parkinson's disorder as well as aortic insufficiency, left bundle branch block and diastolic dysfunction. Even with all of this background, I am not always sure of what symptoms relate to what disorder - it can be confusing to say the least!

Regarding the diastolic dysfunction ("DD"), I understand that it is a mild form of heart failure - if there are no other symptoms such as edema in the extremities or around the heart or lungs. This seems to be my case at present. While I have had DD for a number of years, there is no leg, ankle or feet swelling, however, I do have some accumulation of fluid at night in my chest. I still have a strong ejection fraction - so it all looks good on paper 🙂

You don't mention your mom's age nor her physical activity level but in my own case, I've learned that physical activity is important for both the Parkinson's as well as the heart issues. While I'm certainly not able to do aerobic work-outs anymore, I do attend PD exercises classes (PD dance classes can all be done in a chair) and I've ordered some PD dance DVDs as well as other PD exercise DVDs. Tai-Chi is also offered and is very, very, very good for PD. It helps with memory, range of motion, and lots of other things. I would encourage you to attend some of these classes with your mom (as many caregivers do) as it will benefit both of you.

It is easy to get overwhelmed when you are dealing with a multitude of health problems that involve different body systems, but always remember that exercise, exercise, exercise is key to keeping flexible and healthy as we age, no matter what our medical paperwork says about us. It is important to realize that we each have some control over our health!

Teresa

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Replies to "Hello @brittalisse, I remember us discussing your mom's breathing problems in our Parkinson's discussion group. I..."

I'm glad to hear that you've had diastolic dysfunction for "a number of years." I was diagnosed last year, so knowing that yours hasn't progress far in a few years is encouraging.

@soloact

Yes, my diastolic dysfunction was diagnosed 15 plus years ago and my last echo showed an ejection faction of 65 which is pretty good. That all could change as the valve begins to leak more, but it goes to show that this diagnosis alone should not be frightening in and of itself unless other symptoms come up, then of course you should contact your doc ASAP.

I wish you well!

Teresa

I've had diastolic dysfunction for years diagnoised via right heart cath & have had symptoms for years. Just went to my cardiologist today & he told me I may increase my Lasix from 20 to 40 mg if symptoms becomes too bothersome. Wish I knew my prognosis; I've definitely out lived by at least 3 times the bleak prognosis on some websites. Oh, my symptoms have basically remained the same for at least 15 years. Some good days, some not so good. If I knew about increasing the Lasix a few years ago, perhaps I would have avoided several ER visits due to chest pain and SOB.