@contentandwell JK hepatologist name is Dr.Kalodiah I have a hard time saying his name but he doesn't care. I live in Oklahoma. He told me you don't need to see a neurologist, psychiatrist only one you need to see is me and your PCP. Well when l checked out l was talking to his receptionist about my PCP and she was telling me about her. She said if you doctor won't listen t o you or does want to learn about your health thats affecting you. Drop him now!!! So now l am looking for another doctor. I use to live in NY and I was thinking about moving to MN or Boston. Ive been here to long and l have no trust in the medical system here because in 1978 l was diagnosed with shingles and they just started talking about it in the last 8yrs. And l had a brain injury for 21yrs. I been haing problems with memory, falling, seizures and so on. And l couldnt take it anymore with trying to get doctors to listened so l was crying and praying in church Lord please give me my memory back. And l did get that and its truly a blessing but they are scared because all of this didnt have to go this way or maybe it was autoimmune encephalitis. So all the doctors l.dealth with are watching themselves. And l am trying to get this out about encephalitis, autoimmune encephalitis and also encephalopathy. My sister had a fluid in her house and they stained furniture that was damaged in the house. She was in the hospital for 5days and can't see a neurologist for 2months. And she has headaches everyday. And the doctors here say we have a shortage of neurologist here and we are trying to get more. And l told her that the reason she was having these problems was because of the fumes from the stain. No doctor could see that and now she has to suffer and right away they say its dementia. Oh the hepatologist diagnosed me with hepatic encephalopathy
@techi it really does not sound as if the medical care is good there. I too would consider moving. We are in southern NH and although we have a few good doctors, too many of them are sub-standard so I go to Boston more and more. We hope to sell our house sometime soon and I am thinking that maybe we should move closer to Boston since as we get older the driving is a real nuisance. Of course it will cost much more to live there though than up here.
If the hepatologist diagnosed you with HE what does he/she think is causing it? If I recall correctly it was definitely determined that you do not have cirrhosis. I know my HE episodes were caused by ammonia getting to my brain due to cirrhosis -- my liver was not filtering it out. What are the other causes? It's a very frightening thing to have, I sometimes still get tears in my eyes when I think of it.
JK