@contentandwell This week l went back to my new hepatologist and he said l read your whole chart and he said you had so many doctors tell you so many different diagnoses so he told me you only need to see me and your PCP because everyone is telling your what you have and its so confusing. I can see that. He told me right now we dont need to do you procedure over again. I have ordered your blood work and everything is fine and now l will order an ultrasound to make sure the blood is flowing correctly and also to hear it. If everything is alright l will let you know. I got the phone call yesterday and he said everything is fine and we will schedule you to come back in one year. Loved it.. he said if you have any of those symptoms you had call me and we will get you right in. I told him about the rheumatologist and the medicine he gave me that l had an allergic reaction and when l called him back the nurse said go to the er you might be having a stroke. I knew l wasnt have one but l said l would go because if l didnt they would have that in my records. He told me you ana can be high and it can be due from your ammonia levels so l will call him and let him know. Finally a good doctor as far as my PCP l amooking for another one. The receptionist when we were talking she said leave him. When he not listening go. Then my sister was in the hospital for a week with confusion and the symptoms l had at the beginning of things l was doing. They said first it was all these neuro th hings then dementia and then onset Alzheimer. Then when she took her records to the PCP he did nothing andvwhen l went to get my booster he ask me about her issues which was odd. He had her record's. She didnt get a referral from him she went back and now hes referring her to the same neurologist he gave me who did absolutely nothing. And shes been having headaches when she was admitted to the hospital which is 2wks ago. And the neurologist cant see her for 2months. I think that is absolutely crazy. We have the worst medical system in 48 other states. So l was so blessed to find this new doctor and he was able to see me so fast. We have a shortage of neurologist. And you want to hear something crazy my little dog who has been through all this with me who would lay next to me when she knew l wasn't well. Now she has something wrong with her liver we think her test came back high levels. So now l have to nurse her back to health. I guess we both have to change our diets and drink smoothies. I also found out she can take some of my milk thistle. (I hope not) well thank you for your support.
@techi Lisa, it sounds like things are finally progressing well for you. I am glad you have found a doctor in whom you feel confident. I know from personal experience how difficult it is when your doctor seems to be in the dark about what is wrong with you. I went through that for too long myself, and it was finally my neurologist, a wonderful doctor, who suggested that my symptoms were probably from a liver problem! He of course was right. What was the hepatologist's diagnosis?
Also, what state are you in that has such a lacking medical system? I am in NH and have found that things here are not as good as I once thought they were, but there are some good doctors. Fortunately I am 55 miles from Boston (an hour without traffic, but we leave two hours in mid-day) and the medical care there is among the best in the world so I am turning more and more to doctors there.
JK