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@contentandwell l was writing to ask you a few questions. Last night l had pain in my stomach upper and lower and also my side radiating to my back. I knew that might of been gallstones since that's been a continual pain since 2014. But my stomach because it might be constipation. I am having problems in that area so l am taking the lactulose twice a day instead of once per doctors orders. I have been trying to find out why my doctor isn't getting my cd from the Mayo Clinic but that might be a blessing. They are all worried l might get legal advice which they are right. I am standing up for myself and others who can't. So they are all on pins and needles since this is the same hospital that where it all happened. I was kind of surprised my general practice doctor would send me back there where the mistake started. The hepatologist hasn't got the cd from the Mayo Clinic yet which is a blessing. I will be back at the Mayo Clinic next week if the weather is nice. I can't continue changing dates due to my husband job it's Dec and that's the busiest time of the year for them.i wish I came back in October but God is with me. So I really don't know if my pain be also the HE I thought you might know. And I don't know if know if you gained weight but everytime l go back to the Mayo Clinic I have gained weight. Also I been having problems with my eye sight in the light but not in the dark as much. I don't know if it can be with my mild glaucoma. Even though I just seen my ophthalmologist last month. So I didn't know if you experienced the same thing. So the doctors are afraid that I will seek legal advice which I am not for just myself but also for others who have to go through the same thing and have to live with the consequences. So I thought I would ask you though questions because you might have had the same problems l am having and to know what to do. Thank you for all the answers you have shared with me it's so helpful for understanding what l am experiencing. You have a very Merry Christmas with your family because I definitely will my family from Tennessee especially my grandsons this is the first Christmas with them so I better go out to get a Christmas tree before they come. Thank you for all the information you have given my to understand this journey as I go through to victory!!!
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@techi I had stomach pains prior and sometimes during my HE episodes. The best I can describe it is that my stomach really hurt. It wasn’t nausea and it was not the pain of constipation. Lactulose really upset my stomach a lot, I hated taking it for that reason and also because when I took it I often felt like I couldn’t leave the house in fear of the lactulose acting. Your medical facility says to take it only once a day? Please forgive me if I don’t remember history here but have you been diagnosed with cirrhosis and have you definitely had HE episodes? If so then you need the lactulose to get the bacteria out of your system before it goes to your brain, causing HE. They wanted me to have 3 to 4 loose BMs a day while taking it.
I have had a number of things keeping me away from this forum recently so I do forget a lot. Why are they afraid that you might take legal action? Did they misdiagnose causing problems? I think it’s pretty difficult to make a suit against a doctor unless there is really neglect.
If Mayo or some other large, highly regarded medical facility is close to you I suggest you only deal with them. It sounds as if Mayo is too for it to be a regular option. Mayo is wonderful but for me Mass General Hospital was the answer and I have no regrets. I will never again go locally for anything beyond the most minor of problems.
I did not gain weight until near the end of my cirrhosis, about six weeks before transplant. At that point I had very severe edema and cirrhosis. I gained about 35 pounds in two weeks. It was really horrible and actually painful due to my skin stretching, especially on my feet which were so filled with fluid that it was seeping out my pores and no shoes fit me except slip on slippers.
JK