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Portal vein

Digestive Health | Last Active: Feb 24 10:18am | Replies (65)

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@techi

I had a TIP 2yrs ago and when looking was the Mayo Clinic like was told it was done correctly. So let am supposed to come back to the Mayo Clinic and have it done a second time. I asked my general practice doctor to refer me to a liver doctor which leads really feel he's a great doctor. He told me he would do the procedure himself since he seems it wasn't done correctly. I really don't know how long feel about that since it was done at the same hospital and let only had one appointment with him. So let really don't know what to do? Then also l have been telling so many doctors office a symptoms of not being able to walk. I went with my husband to get a sandwich for lunch. He looked at me and ask me if left was alright. I said yes. Then let tried to eat but let couldn't well that something usual everyone does that. When we got home last tried to get out the car, but let couldn't. I had to ask him to help me. I couldn't stand up and let was walking side to side. Then he got me to the house and took me to the bedroom. I asked him to get me a package that was delivered to the house. I tried to open it and let couldn't my hands were shaking and let couldn't pick it up to bring it closers so long could try again. I failed so long had him bring it closers and let used my teeth to open it up. So let did but let couldn't get the items out. So let just gave up. Then let thought leaders better go to sleep so long tried to pickup my covers and my hands were shaking so much l just said forget it. I went to sleep and then when looking woke up everything was normal again. This has happened before several times but it hasn't happened for months. I tell the doctors and they run test and everything comes back normal. Has this ever happened to anybody? Please let me know nobody else knows.

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Replies to "I had a TIP 2yrs ago and when looking was the Mayo Clinic like was told..."

@techi, I experienced esophageal varices when I had end stage liver disease. The symptoms are passing a tarry stool. I was hospitalized and closely monitored until I had the procedure. I later learned that it could have been fatal. The varices were treated using rubber bands to tie off the bleeding veins. These are not your symptoms and I wanted to add to what @kanaazpereira had shared in the link to esophageal varices. Only your doctor will know.

Lisa, I was at Mayo Rochester when this happened. My liver doctor did not perform the procedure. But he was definitely the one in the command post.. They have people who perform procedures like this on a regular basis. I know that you are frightened about having surgery, but I do encourage you to get this treated. If you were my mom or my sister, I would take you there myself.
Rosemary

Rosemary the new doctor I had talked about it wanted to me to have it done here and he reassured me he would do it. I try to look up patient reviews and he didn't have any and to me that does not good for me. I heard here and I don't know if it's all states but if a doctor has been sued or license has been taken away in one state he can go to another state and it doesn't follow him so he can practice again. And I also know if a state doesn't require it to be on his file it doesn't have too. Sounds crazy so that why sometimes you won't get that information no matter how you search. So if I had let him do it I would have still came back to the Mayo Clinic to make sure it was done correctly so I decided not to let it be done here. And the doctor at the Mayo Clinic wanted me there since October but I have to wait until my husband could take off again. And yes I am getting bloated more but these doctors don't want to get involved or don't know what to do since I have been to the Mayo Clinic.

Also Rosemary I meant to tell you one time when I was given a muscle relaxer I was allergic to I went into cardiac arrest and I wasn't coherent I remember a nurse come in and ask me if I wanted a blood transfusion and I was never told why I needed one. And then I remember they ask me if I wanted to sign a DNR again not told why. And then one time when I wasn't doing well and they didn't know what was going on my daughter said they wanted to put me in a nursing home. So God was with me through this whole ordeal and I pray everything will be taken care of when I go to the Mayo Clinic. So all what was going on seems like it was my liver and now the doctors are covering up. But to hear stories like your is a blessing because it keeps me in the know and what questions to ask when I see the doctors because this is all something new. Thank you

@techi, Lisa, I believe that you are justified in your fear and concerns because your past experience has been so confusing.

I do not believe that it is uncommon for patients to be asked to update their legal papers at the time of a procedure - any procedure. Remember that sometimes patients choices may have changed since original documents have been filed. This can become real important as our conditions change.

Lisa, all of us have unique bodies, and our conditions are unique, too. Please do not assume that you have what I or @contentedandwell have had. Since both of us have been through difficult health issues, we can understand your fears and discomfort. We share because we really do care about you. (JK, I hope it is okay that I included you)

I hope that you find a doctor that you can trust. I agree with you that prayer and trust in God is primary. I am going to pray for you and for the doctors who will be treating you, and the kind nurses who will take care of you.

I am sending you a virtual hug:-)
Rosemary