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Post concussion dysautonomia bTbi mTBI
Traumatic Brain Injury (TBI) | Last Active: Oct 21 8:26am | Replies (10)Comment receiving replies
@elizabeth7 - sounds like a difficult time. Post-concussion dysautonomia, POTS, orthostatic hypotension, worsening temperature intolerance and suppressed immune system area a low to deal with.
Fellow Connect members such as @lakelifelady @kayabbott @nanacate may have some thoughts about dealing with all these conditions after your TBI and can let you know if they've experienced similar. @scottrl also may have some thoughts for you.
Since you mentioned backtracking to check hypothalamus/pituitary/adrenal axis, I wondered if you have upcoming medical appointments/testing? If so, when are any of these coming up?
Replies to "@elizabeth7 - sounds like a difficult time. Post-concussion dysautonomia, POTS, orthostatic hypotension, worsening temperature intolerance and..."
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@lisalucier I have been waiting for my hormone replacement therapy that I discontinued to clear from my system. I should be getting the pituitary serum the first week of November and I’m also hoping to get the specialized MRI in November.
I got referred to a concussion specialist that I have a telemedicine appointment with in January but I’ve had a difficult time finding concussion specialists who understand long-term issues and have an idea about how to mitigate the problems with occupational therapy or physical therapy or any other insights. I’m very open to hearing about clinics where people have had successes with this kind of complex issue. I also have suppressed immunity stemming from this event, which is why we think the HPA axis is important.