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Ostomy: Adapting to life after colostomy, ileostomy or urostomy

Ostomy | Last Active: Mar 24 1:09pm | Replies (419)

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@engelee

I would be interested in having discussion from various viewpoints by those dear people who have 2 ostomies. Do people find their activity limited, equipment difficult to manage, General fatigue. I have 2 ostomies and a Hartman pouch (for 5 years). You can read my profile to save time and space for how they came about, but an ostomy has been with me all my life. Today with 2 external ones , I am not worse off than any of you, but can’t bend over hardly at all ( maintain with no loosening) and at times, feel like I just have a bunch of plastic on my belly ( I miss a smooth abdomen). My diet is very restricted—-no sugar, all refined grain, 4 small meals per day etc. etc.. Sometimes (rarely) I could just scream, but think of my faith. Besides my darling husband , my doctors;Igor Frank, Connor Loftus are the core of my well-being. I go to Mayo R every year . Two ostomies is not the end of the world, but ,sometimes it’s hard to see over the horizon.

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Replies to "I would be interested in having discussion from various viewpoints by those dear people who have..."

@engelee I certainly admire you for talking so openly about your health and helping others. I can understand that meals must be a problem. Is it possible for you to eat out with friends?
Have you read the posts by @hodagwi —he could certainly use some info from you