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Ostomy: Adapting to life after colostomy, ileostomy or urostomy

Ostomy | Last Active: Mar 24 1:09pm | Replies (419)
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@hodagwi

2005 prostate cancer radiation through those tissues weakened them. doctors don't know why the connection was made. all the doctors say to have the surgery as they have for the past 3 years for colon and bladder. yes, it would prevent kidney infections I am told since will keep the solids and liquids separate but am told that could still have infections through the stoma. I am not getting any younger for about an 8 hour surgery and long recovery so my kids say to do it but they are not around to take care of me. this has been ongoing and I am part of an ostomy support group so talk to them monthly about how they are doing and issues in have one or the other. hard to find someone that has both bags.

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Replies to "2005 prostate cancer radiation through those tissues weakened them. doctors don't know why the connection was..."
Becky, Volunteer Mentor | @becsbuddy | Mar 15, 2020

@hodagwi Your doctors may delay the decision about surgery because of the covid-19 situation we are currently in, but that gives you more time to research and talk to people. I’ve come up with some things for you to think about.
1. How is your overall health? 2. Can one of your children come to be involved in discussions with doctors? 3. Will your wife be able to help? 4. Have you spoken to an ostomy nurse to discuss all of this and your concerns? They specialize in stomas and their care. 5. Can you easily manage the stoma you have now (if you have one)? 6. What changes in physical activity will you have in the short/long term? Can you live with these limitations? 7. Could you and your wife use some short term help? The surgery and your rehab will be very hard on her also. 8. Can your doctors recommend anyone who has had this surgery that you could talk to?
My sisters and I had to do this for our elderly mom when she got bladder cancer. And then again when she fractured her pelvis. I hope this helps a little. Becky

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