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Ostomy: Adapting to life after colostomy, ileostomy or urostomy

Ostomy | Last Active: Mar 24 1:09pm | Replies (419)

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@hodagwi

I am at a crossroads with a fistual (channel) connecting my bladder and colon just inside the rectum. Mayo R wants to take out bladder and colon and replace with two bags. just got over another bladder/kidney infection for last 5 days with antibiotics and get them every 3-4 months. very painful. am 73 this year and don't know if the surgery is right for me. sexual activity is still important to me/us. don't want to give that up but want to live. when at Mayo R in 2018, it didn't sound like my two providers have done both surgeries at same time plus reconstruction after taking out bladder and lots of colon. prostate radiation in the area from 2007 makes tissues in the area fragile. being pain free is important but so is quality of life. praying a lot. stay tuned as am still undecided.

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Replies to "I am at a crossroads with a fistual (channel) connecting my bladder and colon just inside..."

Hello, @hodagwi . Sounds like you have some big decisions to make. Have the doctors given you any pros and cons for the surgery? Is it mainly to prevent any more kidney infections? Over time, kidney infections could cause you major problems and maybe destroy the kidney. If you don’t mind my asking, what was the original reason for the bladder-colon connection?