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Anyone had a successful experience w/ Mayo Pain Rehabilitation Center?

Chronic Pain | Last Active: 1 day ago | Replies (75)
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Profile picture for kmdenton33 @kmdenton33

The mayo doctor diagnosed me with CSS. He did not do further tests. Afterwards I saw a neurologist through honor health who diagnosed me with Pots and I most likely have long covid which gives me PEM (post extertion malaise) which causes me pain) I very well could have CSS but this to me is a diagnosis without getting to the root of the problem and what is causing the pain to begin with.

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Rachel, Volunteer Mentor | @rwinney | Oct 19 2:25pm

@kmdenton33 and that there lies the problem - getting to the root of the problem. I'm sorry you're having these challenges and a mixture of diagnosis. I've been there and I'm still there because I have a CSS. I felt the same way I just wanted to get to the root of the problem which is exactly what I did when I went to Mayo pain Rehab Center. It doesn't always make sense at first but once you sit through the scientific explanations and the Dr's. really break it down you'll start to understand that CSS is an umbrella term over various diagnosis such as POTS, etc... affecting the central and peripheral nervous systems.

Are you interested in learning more about CSS?

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