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Ostomy: Adapting to life after colostomy, ileostomy or urostomy
Ostomy & J-Pouch | Last Active: Jan 10 12:43pm | Replies (457)Comment receiving replies
@formydad, Here's some information about bladder removal and urostomy:
- Bladder removal surgery (cystectomy) https://www.mayoclinic.org/tests-procedures/cystectomy/about/pac-20385108
- About Your Bladder Surgery With an Ileal Conduit (Urostomy) https://www.mskcc.org/cancer-care/patient-education/about-your-bladder-surgery-ileal-conduit-urostomy
- Managing Your Life After Bladder Removal https://www.webmd.com/cancer/bladder-cancer/life-after-bladder-removal
I also suggest following the Living with an Ostomy blog here on Connect https://connect.mayoclinic.org/page/living-with-an-ostomy/
@nickkarenl @jimmy2248 and @hodagwi can provide first-hand experience about living with an urostomy. @formydad, you are so wise to gather information to help your dad prepare for surgery, as well as for your mom who will be by his side as he adjust to life after bladder removal.
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I have had mine coming up 8 years now. I wear a ostomy pouch during the day and hook up to a overnight bag for bedtime. It holds 2 Ltr of Urine enough to last all night so you dont have to get up.
Within a couple of days I had no trouble changing it myself
As far as a brand I tried them all. They will send you free samples to try. I finally settled on Coloplast products and have been using them for years.
I have some little tricks I invented and would be glad to share them with you if you like. It makes it easier.
I go once a year to Sunnybrook hospital for a cancer scan and have been cancer free each time. Wearing a bag is better than the alternative. Hope this helps. Good luck…Foss
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