← Return to Ostomy: Adapting to life after colostomy, ileostomy or urostomy

Discussion

Ostomy: Adapting to life after colostomy, ileostomy or urostomy

Ostomy | Last Active: Mar 24 1:09pm | Replies (419)
Comment receiving replies
@pmodahl

Hi to the group! We’ve been dealing with my son’s UC since 2012. All meds such as Remicade, Humira and Entivio have failed to reduce his symptoms long term. As a result he has been on prednisone ALOT. Now the Drs recommend his large intestine be removed. My son is only 16. Can anyone give us some advice about what to expect, how to handle the ileostomy bag, etc.?

Jump to this post

Replies to "Hi to the group! We’ve been dealing with my son’s UC since 2012. All meds such..."
Becky, Volunteer Mentor | @becsbuddy | Sep 20, 2019

@pmodahl Hi and welcome to MayoClinicConnect. I’m sorry I just saw your request for information. @colleenyoung likes this blog that you might follow. https://connect.mayoclinic.org/page/living-with-an-ostomy/. This must be such a difficult time for your family. How is your son doing? You should be able to get lots of help on MayoClinicConnect

VIEW AND REPLY
Kanaaz Pereira, Connect Moderator | @kanaazpereira | Sep 26, 2019

Hi @pmodahl,

How is your son doing? Did he have the surgery? I thought it might help to connect with a few members – @supercalifragilistic @kitmus @beanglow @mayogirl @mjgstewart @mrigs @sandyrb – who’ve shared their insights about ileostomy.
I sincerely hope all is well, and look forward to hearing from you.

VIEW AND REPLY
Kanaaz Pereira, Connect Moderator | @kanaazpereira | Dec 14, 2019

Hi @pmodahl,

I wanted to follow up and ask after your son; how is he doing? Is he managing well with the ileostomy bag?

VIEW AND REPLY