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Ostomy: Adapting to life after colostomy, ileostomy or urostomy

Ostomy | Last Active: Mar 24 1:09pm | Replies (419)

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@kanaazpereira

Welcome to Connect, @nickkarenl. I’m tagging @jimmy2248 @loricarey @hodagwi @palevsky @predictable @rayleemorris @manveen @mlmcg, as they may have some valuable experience to share.

Some common causes of urostomy odour:
Urinary tract infections and kidney infections can make your urine smell stronger and produce more mucus.
Some medications can affect the odour e.g antibiotics, dietary supplements etc
Certain foods can cause increased odour
Ostomy: Adapting to life after colostomy, ileostomy or urostomy" https://www.mayoclinic.org/diseases-conditions/colon-cancer/in-depth/ostomy/art-20045825

@nickkarenl, could you share a few more details? When was your spouse diagnosed with bladder cancer? Did he have the urostomy recently?

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Replies to "Welcome to Connect, @nickkarenl. I’m tagging @jimmy2248 @loricarey @hodagwi @palevsky @predictable @rayleemorris @manveen @mlmcg, as they..."

My husband was diagnosed with bladder cancer in 10/2011. He had neoadjuvant chemo for several months, his major surgery including formation of the ileal conduit for ostomy in spring 2012. Lots of complications, and ureter revision surgery in summer 2013. He’s been on the kidney transplant list for a couple years now, though is currently inactive on the list because his GFR is at 24...higher than when he was first places on the list.

Thank you so much for your reply, @kanaazpereira . UTI has seemingly been the issue; antibiotics helped considerably! He seems to get UTIs somewhat frequently, BTW, to answer your question, the bladder cancer diagnosis came in 10/2011. Urostomy was placed during surgery 5/2012, following multiple rounds of chemo.