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Ostomy: Adapting to life after colostomy, ileostomy or urostomy
Ostomy | Last Active: Mar 24 1:09pm | Replies (419)Comment receiving replies
Hi,
My name is Lori,im not good with this. As soon as I get involved I have a bad spell and I'm gone. I have ben sick so many years,to many hospitals. All the big ones. I'm with Cleveland Clinic the last couple. I have tried so many meds for the extreme nausea, they don't work. He said the damage in the colon from the gastroparesis is causing the nausea and vomiting. They are going to do the colostomy bag witch should take the symptoms away. Does anyone know if it will work? They did the P.O.P. procedure to make the food go through but that didn't work, almost forty percent is still in the stomach?
Replies to "Hi, My name is Lori,im not good with this. As soon as I get involved I..."
I go to Mayo on August 20 for evaluation for both a colostomy and urostomy since I have leakage between the colon and bladder. Anyone else have both? How long were you in the hospital? How often was follow ups needed? Have to go to Mayo or at local hospital since I am 300 miles from Mayo. Did you have options to the surgery? How soon did they want to operate when you decided to have the surgery? I have frequent U
Things do not sound as if you have had a great time with your GI track. All I know before I had my ostomy put in was I was throwing up everything I ate and drank. I went to the emergency room and was told I was constipated, I knew I wasn't, so I went home with a big jug of stuff and figured I'd try it. It didn't work so I went back again to the ER and asked if the doctor I saw was on duty. He was not, if he were I'd ask for someone else. I was admitted to the hospital, because the doctor I saw know I was not constipated, that was a Wednesday night. All day Thursday they ran test, got me ready for surgery first thing Friday morning. Most of what happened I don't remember I just know that I woke up in ICU with an ostomy and told it could be in for 6 months or forever. It is in forever and I have not thrown up since I left the hospital, that was 3 years ago.
I have had about a third of my GI track removed and getting use to caring for an ostomy, whether it is an ileostomy, a colostomy, or whatever you have, will take time to adjust to. I look at it as getting use to changing a babies poopy diaper. Poop is the food your body cannot use, don't be afraid of it just remember it once was food. You may have to find out what foods you can have and cannot have. You may be able to have everything you like and if you can't getting use to a new lifestyle can be interesting. If you have family and friends that are willing to work with you and your new lifestyle it can be very easy.
Once the doctors do the surgery they will have a better idea what is going on. That is what happened with me. Good luck.
mlmcg
Thank you, silly as it sounds I look forward to it so long as it works. It has ben sooo many years. Many misdiagnosis, it is gastroparesis along with others.
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Hi @loricarey, welcome to Connect. You’ll notice that I moved your message about colostomy bag to this discussion groups called:
- Ostomy: Adapting to life after colostomy, ileostomy or urostomy
I did this so that you can meet others talking about living with a colostomy. Simply click VIEW & REPLY in the email notification to read through the past messages and ask fellow members questions about how to prepare for a colostomy.