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← Return to Ostomy: Adapting to life after colostomy, ileostomy or urostomy
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Ostomy: Adapting to life after colostomy, ileostomy or urostomy
Ostomy | Last Active: Mar 24 1:09pm | Replies (419)Comment receiving replies
I see that this group isn't very active, currently. I had my ileostomy at Mayo in January 2013. I am very happy with it. I haven't read all the posts above yet, but maybe they'll be something new for me to learn or contribute. Fingers crossed this thread becomes more active... I will definitely participate. I'd really like to help people not be scared.
Replies to "I see that this group isn't very active, currently. I had my ileostomy at Mayo in..."
Put pin hole in bag so gas does not fill up bag then you are1/3 full of stool plus gas and you have a mess
Hi my dad is getting one - im not sure what the name for it is but bag on outside of body after bladder removal w/ in 6 weeks any advice or info you can give me to pass on?
THANK YOU FOR OFFERING TO HELP. ITS A SCARY DIFFICULT TIME. MY MIND GOES ROUND & ROUND. I DONT HAVE A BAG NOW BUT THAT COULD CHANGE. IT WILL DEPEND HOW I AM. TAKE CARE
I am fighting getting a colostomy bag. CTCA uses a system called Y90. Implanted radioactive pellets implanted in the tumor. My tumor is on the anus, so surgery to remove it is out of the question. Hopefully, I am a good candidate for this. I am, was very active. The bag would put a damper on my life style. I know people have them and prosper. But it scares the poop out of me. Hope God as my co-pilot will find an alternative to the bag.
Well, I wouldn’t say I’m “happy” with 2 ostomies and hartman’s pouch, but grateful for ongoing access to my MDs at Mayo R and continually work on adapting and readapting with therapist. My prayer life and faith in God’s will helps. The downside is limited activity, uneven stoma prevent hernia belt- even worked directly with CEO of Nu-Hope to design belt and couldn’t come up with anything. It affects sense of femininity, despite consoling husband. Eileen Fischer dresses and clothes made for ostomies.
@rwfliess I certainly do hope that you will jump back in! There is always a need for your expertise!
I was diagnosed with Ogilvie’s Syndrome in 2018. Had an ileostomy in October of 2018. Later developed a herniated stoma.
Hi I'm Catelynn I also had an ileostomy and am seeking support in coping with issues re: same
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Welcome to Connect, @rwfliess. Indeed the ostomy group is new. Thanks for helping us to build a safe, welcoming space where people can talk frankly about living with an ostomy. I'd like to introduce you to @hanseron who had an ileostomy 50 years ago!
Rwfliess, what was the biggest challenge you experienced adjusting to life with the new ileostomy and how are you managing now?