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My story is that I’m 58 and very active all my life, playing tennis, road cycling and hiking and felt great until in July I began to get the awful heavy arm stiffness which spread across shoulders and then down to hips and hamstrings and I felt like I had suddenly skipped 15 years and become old. Luckily I got to see a rheumatologist who was experienced with PMR and quickly got diagnosed after a week on 20mg of Pred. Fast forward two months and now I’m on 10mg and feeling more or less my normal self apart from some anxiety and foggy brain feeling sometimes. Physically I’m continuing my usual activities with perhaps some small tweaks. I’m also eating better and cut down on alcohol.. I’m hoping to start tapering down to 9mg in the next week or so (although rheumatologist doesn’t know that as he wanted me on 10mg until Christmas!) I think we know our own bodies better than anyone and I’m prepared to experiment a little with dosing of Pred and try to find a lower level that keeps the dreaded PMR demons at bay. Then of course the adrenal issues can be another hurdle when you get lower on Pred but I’ll sorry about that when I get there . So yeah to answer the initial question, it seems like Pred is the accepted treatment, certainly initially. I hate taking the stuff but it’s either that or trying to fight PMR pain on a daily basis until it decides to go away. I think staying positive and staying active are really important, especially if you have always been used to being active.. good luck 🤞

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Replies to "My story is that I’m 58 and very active all my life, playing tennis, road cycling..."

@martyn

My rheumatologist didn't seem to mind if I "experimented" a little bit as long as my prednisone dose stayed "relatively stable" and the overall trend was a gradual decrease in my dose. She didn't like it when I increased my dose without telling her which I confessed to doing more than once. Pain is the devil that makes you do things you know you shouldn't do.

I would recommend not experimenting in the wrong direction just because someone on the internet might tell you to increase your dose. Those people can't do face-to-face visits, order labs and other tests to try to figure out what is going on. I think it is always better to work with your doctor and hope for the best.

All my doctors "encouraged me" to stay active as much as possible.