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DiscussionHow were you diagnosed with PMR ? How are you currently managing?
Polymyalgia Rheumatica (PMR) | Last Active: 6 days ago | Replies (42)Comment receiving replies
Replies to "My story is that I’m 58 and very active all my life, playing tennis, road cycling..."
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@martyn
My rheumatologist didn't seem to mind if I "experimented" a little bit as long as my prednisone dose stayed "relatively stable" and the overall trend was a gradual decrease in my dose. She didn't like it when I increased my dose without telling her which I confessed to doing more than once. Pain is the devil that makes you do things you know you shouldn't do.
I would recommend not experimenting in the wrong direction just because someone on the internet might tell you to increase your dose. Those people can't do face-to-face visits, order labs and other tests to try to figure out what is going on. I think it is always better to work with your doctor and hope for the best.
All my doctors "encouraged me" to stay active as much as possible.