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Ostomy: Adapting to life after colostomy, ileostomy or urostomy

Ostomy | Last Active: Mar 24 1:09pm | Replies (419)

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@mlmcg

When I saw colostomy, ileostomy, urostomy on Mayo Clinic Digestive Health I was so happy. I have so much I need to know and I can share some things. I then had this feeling that I was needed in the bathroom. I am not sure what can be worst than a full bag/pouch/appliance of liquid and air. I had to clean the front of toilet, the floor, the clamp, my hands, and change my clothes. At least I did not hit my shoes. I know we are to empty our bags when it is a third full, but I have not figured out when the bag is 1/3 full, when I have diarrhea my bag goes from empty to full in a matter of minutes.

My ostomy is the results of radiation I had on my lower abdomen over 30 years ago. It took that long for my sigmoid to die. I now have an ostomy, for life, and a third of my GI track is gone. I have not found anyone, yet, who has had lymphoma, with their sigmoid killed from radiation wearing a bag over their stoma.

Learning to clean and replace your bag, once you get home from the hospital, can be an experience, and one not for sissies. Poop is your friend. It is the food you put in your mouth that the body could not use. When we forget it is food we may become fearful of poop and do not want to look at it or willing to have it get on our hands.

What to eat and what not to eat is my biggest problem. With a third of my GI track gone I have to take lots of meds to make up for what my body cannot get out of the food I eat. I do eat a balanced diet and try new things. The diarrhea I am having now could be a reaction to a new med I am taking, but it could be from the new food I am trying out. I eat mostly veggies. I do have some chicken because I am unable to eat beans. Plain Greek Yogurt is my go-to food. Cheese is one of my other go-to. Ice cream is my only bad food, it takes a month for me to go through a quart. Canned fruit with yogurt is much better than fruit in your yogurt. I live by myself so I do not have to cook meals, any suggestions in what to eat would be helpful.

mlmcg

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Replies to "When I saw colostomy, ileostomy, urostomy on Mayo Clinic Digestive Health I was so happy. I..."

I have 2ostomies. Food is a cautious area for me. I eat brown rice, appropriate fruit,peanut butter and Jif marshmallo. All in small amount. Wheaties for breakfast, dinner my husband is creative within guidelines. On my last visit to Dr. Connor Loftus (GI) at Mayo he came up immediately with 2 possibilities; microscopic colitits and small bowelovergrowth. His diagnosis was cleared by an immediate colonoscopy with 8 biopsies of colon tissue ( that was negative) . So, he started me on doxycycline for small bowel overgrowth. The diarrhea cleared up in 12 hours. I continued the med for 10 days. Note: while waiting for my annual appt. at Mayo I went to local doctors and not one mentioned either of Dr. Onnors’s diagnosis. He is sooo talented.

I have had problems with diarrhea (Siibo) at first doxycycline helped but I worried about decreasing the efficacy af that drug. So I am trying Probiotics. And so fat they are helping . I have also severely limited my sugar intake and increased brown rice and cheese.

You might want to try a fairly new product —-cold pressed bottled organic drinks that are capable of supplying numerous minerals and vitamins. They come in a variety of combinations (some multiple) like kale,cucumber,broccoli , ginger,mint tea ,etc. Right now I shop for them in a refrigerated part of my organic store. They do help provide vitamins, minerals and some energy. The other thing to think about is probiotics. Found in the same store .