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Ostomy: Adapting to life after colostomy, ileostomy or urostomy

Ostomy | Last Active: Mar 24 1:09pm | Replies (419)

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@hanseron

I have had an ileostomy since 1967. Cause, Ulcerative Colitis. Lots of positive changes and developments in surgery, care and appliances since then. When I had my surgery there was very little help available. Appliances were terrible and ostomy care was practically non-existent. Todays ostomy appliance and equipment suppliers are more than willing to help new and old ostomy patients. In fact many of them have ostomy nurses on staff to help with treatment and questions. What a difference 50 years makes.

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Replies to "I have had an ileostomy since 1967. Cause, Ulcerative Colitis. Lots of positive changes and developments..."

Pfft! My son had surgery last wk and has an ileostomy, and nurses came by once "in patient" for pt edu, and now that he's discharge there's no support or help. I was trying to be proactive in getting things lined up for my lil guy, and here we are: tomorrow is day 5, and it needs to be changed, and theres no support from the hospital that did the surgery (no doctor, no nurse prac, no nurse, no appt for pt edu). They did the surgery, I left my son out in the dark and cold!