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Ostomy: Adapting to life after colostomy, ileostomy or urostomy

Ostomy | Last Active: Mar 24 1:09pm | Replies (419)

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@colleenyoung

Hi @1228angela @nythriver @manveen @dawn_giacabazi @hatethis @soul and @kidbjp, I'd like to invite you to this new discussion group about ostomy. People who have recently had an ostomy have many questions. I'm hoping that you can share your experiences to help us get the conversation started and make people feel welcome talking about adapting to life after a colostomy, ileostomy or urostomy. Share your story.

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Replies to "Hi @1228angela @nythriver @manveen @dawn_giacabazi @hatethis @soul and @kidbjp, I'd like to invite you to this..."

Hi Colleen, hope you are well. it has been ages but I feel like just yesterday what happened to my mother. My mother had rectum cancer and she had a critical long surgery using laparoscopic early (March) 2016. The first surgery took for 7 hours. She was living with colostomy for a few weeks carrying bag. I and my sis were the care givers. Learning to clean the bag for my mother. Learning to attach when the bag was broken. We had gone through up and down depending on how she was doing. But we made it through her second surgery Completion and then no need to bother with the bag. We were able to find the good doctor from Thailand who came to practice at Mayo clinic in the United States. The doctor and the team are on top of everything. They work as a team like Mayo clinic doctors. The knowledge, the advanced medical equipments and great experience. We have been very fortunate. My sis and I took turn taking care of my mother during her surgery and her stay at the hospital for 3 weeks. She is now recovering well from the rectal cancer but early this year my mother had entire body scan and the doctors found nothing. Good news and great report. We had a good time, a bad time and challenging time together but we have hope and believe in our faith that my mother would be getting better. So I encourage for those care givers, keep up with the hope and strength, positive, a lot of care, patience, love, kindness, support and follow up. There are the qualification of the caregiver. We are grateful to Mayo Clinic for having and for accepting Oversea doctor to come and practice with Mayo clinic Doctor. Our thanks goes to Mayo clinic for saving so many people life including my mother. It is nice to be with you on line and kindly share with every care givers. It is appreciated. Thank you. Best to you and everyone. Soul

@soul

What a wonderful report - I'm so glad that you shared it with us!

Teresa

Good to hear from you @soul. What a remarkable outcome for your mom and your family. If I recall correctly, at the time of diagnosis, your mother was very nervous about having surgery.

At the time of the first surgery, did you know that the colostomy was going to be temporary? Did you learn any tips about colostomy care that you might like to share?

It is true, Colleen. My mother was nervous and did not want the surgery. It was a lot of discussion back and forth with the doctor and my Mother had confirmed with the doctor that the colostomy care would be a temporary and decided the date for the second surgery to remove the bag and close the stoma. It was only 10 days Difference between the first and second surgery. During colostomy care, the hospital provided the 2 specialist for the colostomy care. They came to clean the bag for 5 days and taught us how to change the bag and clean. So my son s and I had to work on it. We learned so much from it. One night, my Mother bag was broken and we had to struggle to attach the new bag. But if you have learned from specialist and learned the technic how to cut the bag, it is easy.
When I recalled the time we were there it is a rewarding experience since my mother is recovering well. It is truly blessings.

Dear Teresa, I am glad to share with everyone. Sharing experience is the best we can improve a better support and care to love one since we are the care givers. Thank you.

If the adhesive is not sticking to skin and bag does. Not have good fit use hair dryer to make adhesive stick better or place your hand over bag once applied up to15 minutes heat from your hand makes a better seal as well as Hair dryer also I had the bag fall off at least once daily due to stomach issue but thank god only had it for2.7 minths