← Return to Lichen Sclerosus: Any other women dealing with this disease?

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Profile picture for prudence21 @prudence21

@suzyq04 Yes, it is a horrible disease/condition. I have Sjogrens as well and I am sure that contributed to it. Clobetsol does stink so bad. I only use it when I have a reallly bad flare. There are times the itching and burning are so bad, I think I might go insane. Anyone have any other methods of coping with this horrible monster?

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Replies to "@suzyq04 Yes, it is a horrible disease/condition. I have Sjogrens as well and I am sure..."

@prudence21 I also have lichen sclerosis and have been under the doctors care now for almost 2 years. I use clobetasol twice a week and also use Vaseline to keep that area protected. I found that it helped me to use soap that has no fragrances since that could irritate the skin. I now have no itching or soreness in my vagina. I hope this helps. Any harsh soap will only do more damage since lichen sclerosis causes the skin to be very thin. As we age we as women deal with more and more issues so I do follow the advice of my Gyn. She is amazing. Good luck and stay strong !