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Willing to help

Polymyalgia Rheumatica (PMR) | Last Active: Oct 22 8:17pm | Replies (52)

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@gmdb I don’t know if it will help you but the diet protocol I used I feel absolutely helped me. I’ll share it in the event you want to try.

First lowering carbs did not play a role in the diet. My goal was to eliminate foods that caused inflammation in the gut. The mitochondria play an important role and your digestive system needs to heal. More than 70% of your immune system is located in the gut. If this is damaged it causes malfunction which many think lead to auto immune disease.

It will take time to heal it. This doesn’t work in a week or 2.

Avoid things that are inflammatory regardless of your are allergic to them. Eliminate seed oils. They are in many things so you will start doing more of your own cooking to avoid. Cook in avocado oil or olive oil.

Eliminate gluten but don’t replace with gluten free foods that have binders and other bad things. In other words give up bread and don’t replace with gluten free bread.

No dairy. Replace milk with almond milk.

No nightshade vegetables. No peppers, tomatoes, eggplant.

Eliminate corn. Eliminate beans/ legumes.

Eliminate nuts with the exception of pistachios and almonds.

Buy organic chicken. The usual chicken is fed with corn and therefore has much higher omega 6s. Organic fed chicken has a better ratio of organic 3.

What I lived on to heal my gut and still eat relatively 85% of my current diet:

Breakfast: 3 or 4 eggs with yolk, 1 avocado, 1 cup of organic coffee with almond milk.

Lunch: 1/2- 1 pound of salmon. Only wild caught salmon. 1 cup of white rice. Serving of kimchi.

Dinner: Steak, chicken, or ground beef. White rice. Asparagus

Snack: pistachios or berries

I did lose weight during this, so at times I had to increase my consumption. It also was a bit expensive buying everything organic and eating so much fish and meat.

I swear it helped me heal. Hope it helps and good luck.

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Replies to "@gmdb I don’t know if it will help you but the diet protocol I used I..."

@staydisciplined Thanks. Most of these I have been doing up to a point, and I did think the omly other step I could take was to go on the full anti-histamine diet, but not a lot left to eliminate. Prior to PMR I went through that FODMAP process, which eliminated any of the foods that had could cause gut problems. This, plus PMR and pred side effects, lead to the following diet:
- very low carbs, no gluten, primarily to eliminate impact on weight and reduce risk of I reduce diabetes risk from pred.
- no alcohol as part of he above and reduce liver risks
- minimal dairy - some natural yoghurt and milk in coffee - to control cholesterol risk and ensure calcium sources for bones
- Only nightshades in diet are tomatoes. I looked into this and felt the benefits of tomatoes including their own anti-inflammatory potential outweighed possible downsides
- no corn etc - based on reducing carbs and impact on weight and blood sugar. Vegetable primarily, broccoli, cauliflower, small amount of sweet potatoe, small amount of beetroot. Lots of leafy greens and avocado.
- nuts, mostly walnuts and almonds, although I am aware that walnuts cause somesensitivities relating to gums so I have been reducing those in the diet. At this stage I am not convinced that peanuts are nessearily problematic. I managed to track down some research on the negatives that seemed to originate in a study on obesity, with the findings largely being based on large amounts of peanut butter consumption. However, there may be other issues.
- Haven't used seed vegetables in years. Was using extra virgin olive oil and ghee and coconut oil prior to PMR. Have now removed ghee and coconut oil for better control over cholesterol risks from pred side effects.
- No eggs due to cholesterol risks.
- Fruit is berries only or Queen Garnet plums when in season - the latter being a special variety develod in Australia that has a higher anti-inflammatory content than blueberries or raspberries.
- Ground grass fed beef around 250 g per week; salmon and some barramundi (Australian fish); and chicken. Fresh, not frozen, and organic and/or free range depending on availability.
- psyllium husk and organic collagen protein for fibre, cholesterol management, and keeping tendons healthy which weaken from the pred.

All of this has certainly helped battle many of he pred side effects, and I think the immune system is pretty healthy overall. Only illness I have had is a short cold during the last five years. That's excluding methotrexate toxicity which made me sick for six months and finally landed me in hospital for 4 days, with a further 3-4 months for a full recovery from it.

I do wonder whether sudden onset of PMR (due to a flu vaccine in 2023, verified by specialist diagnostician at the time) is different to PMR that slowly creeps up and is often captured by the doctors before it gets to a really debilitating phase. With sudden onset you go from being perfectly healthy to waking up one morning with savage pain in all the muscles PMR attacked. Like someone flicked a switch overnight.

@staydisciplined
Hi. Help me understand.
Why no beans, legumes?
And, why so much rice? It’s highly processed and white is especially inflammatory.
And lastly, why only berries?
No apples, oranges, peaches, melons, cherries, grapes?
These have all been in my diet except for the rice.