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Polymyalgia Rheumatica (PMR) | Last Active: Oct 22 8:17pm | Replies (52)

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@dadcue A very nice summary of where we are up to on treating PMR. And, yes, the treatment of RA is well ahead of that for PMR, In Australia only pred is actually approved for RA. But it is legal to try the RA treatments and see if they may work, possibly based on the idea that you may actually have elderly / late-onset RA. It isn't actually legal to prescribed the biologics unless you can prove the patient doesn't have PMR but sero-negative RA, or GCA.

So far over a 3 year period I've tried methotrexate from the start with pred. That lasted 18 months with ultimately very bad side effects and now the last 12 months on HCQ, Neither have been effective and I still flare badly and can't get below 12 mgs of pred. Next one on the list is leflunomide, but feeling pretty doubtful that will do any good.

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Replies to "@dadcue A very nice summary of where we are up to on treating PMR. And, yes,..."

@gmdb sorry to hear you are still battling. Have your tried to alter your diet and heal “leaky gut”? I think it had a big factor in my recovery.