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frankiechi avatar

It’s back!

Polymyalgia Rheumatica (PMR) | Last Active: Oct 30 12:11pm | Replies (35)

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Profile picture for voll @voll

Yes this is on my second go around after 10 years. Well, after you get over the disappointment you get your meds and start down the road to tapering off. It sucks but it’s better than other conditions we could be dealing with. Hang in. We will get through it. 👍 someone just asked if I was done yet. No. Down to 2 mg of prednisone and weekly methotrexate. But we are getting there!

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Replies to "Yes this is on my second go around after 10 years. Well, after you get over..."

@voll

Interesting to know . so it seems you may get 10 years of respite form PMR.
I've tapered down to 2mg of prednisolone, but the doctors are not doing anything as such. I am waiting for full bloods as I have hypo which jumped to hyperthyroidism. The prednisolone is messing up my thyroid. I can not get off the steroids.:(( no one has offered me methotrexate. That's the adrenal system messed up.
when you think about it the body is a marvellous thing.... yet very complicated .

@voll How long did it take for the methotrexate to start working? I’ve been on it (with no prednisone) for 2 months, but it still kicks my butt when I take it. Patience is wearing thin!