← Return to It’s back!

Discussion
frankiechi avatar

It’s back!

Polymyalgia Rheumatica (PMR) | Last Active: Oct 30 12:11pm | Replies (35)

Comment receiving replies
Profile picture for ga29 @ga29

@johnbishop does this happen for most of us suffering from PMR, a remission? Does it just naturally happen?

Jump to this post


Replies to "@johnbishop does this happen for most of us suffering from PMR, a remission? Does it just..."

@ga29 - I’m not an expert and have no medical background but given the correct diagnosis and treatment, I do think that most folks with PMR will be able to have it go into remission. I think the problem is that a lot of people with PMR have other underlying conditions that may make remission difficult.

@ga29 Mine started December 2025, diagnosed early January. Refused prednisone (side effects) until capitulating March 20. Tapered from 30MG 1st week to 2.5MG early June, then August skipped an additional day each week until last dose Sep 9. Pain level 1-3, quite doable. Not certain yet if this is called remission but better than pain Jan/Feb level 7-9 Grateful I was on prednisone less than 6 month and hoping this never ever comes back. What a bear this PMR all are dealing with. Stay positive.....

@ga29
I came down with PMR in the year 2000, so 26 years ago. I've never had a recurrence since. The doctor started me on Prednisone, which helped immediately, but because of side effects I learned of through googling I asked the doctor how soon I could get off it. He told me that since it had been less than 2 weeks since my first pill, I could quit cold turkey, which is what I did. Googling back then also said it could last 2-5 years. For close to 2 years it was really rough - especially the shoulders and upper arms. I don't know if that could be why I've not had a recurrence. (I'm 87)
A friend came down with PMR about 5-10 years after me; she took all the meds. She's never been able to get weaned off of all of them and she developed osteoporosis which she definitely blames on the Prednisone. She says she wishes sometimes she'd have toughed it out like I did.