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Profile picture for tweetypie13 @tweetypie13

@epidoc so sorry you have joined our ranks.

First off, I am in my 3rd year of active PMR. This is not a one shoe fits all kind of disease. Note 80yo female now. I did not, and do not, have any other health issues.
I hve always led a healthy diet, active lifestyle. This was probably brought on by a bike accident. Months to diagnose, CRP and SED numbers off the charts.
I was abt 1 yr on prednisone then started Kevzara biologic. As the kevzara kicked in (took 3 months as suggested) as I tapered off the prednisone.
I am 1 1/2 yrs on Kevzara , hoping to be off by the first of the year.

Lifestyle chges ….i was down and out crawling on the floor ‘til diagnosis.
Keep a daily journal of pain level, meds, diet, exercise. Dr visits etc.
I threw everything at it. Lucky enough to have the exposure and access to lots of support. Aqua PT, Functional Movement Specialist, fabulous husband, friends and assortment of great drs.
Lastly, scream, yell, and fight for all the help you can get.
Good luck.

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Replies to "@epidoc so sorry you have joined our ranks. First off, I am in my 3rd year..."

@tweetypie13
Interesting, about your theory that your PMR followed a bike accident. I had wondered if my PMR was brought on by a fall I took hiking in mid-May 2026. I had a direct hit to the infra-patellar bursa with significant swelling for months. My PMR symptoms started in June-July time frame. I thought that the very mild symptoms in my hips and shoulders were due to too many squats and using higher weights when weightlifting. However during a vacation in August, where I did no squats or weightlifting, my symptoms became worse.

I diagnosed myself in August-September timeframe based on symptoms and family history. Both my Father and his older brother had PMR. It took three weeks to get a definitive diagnosis because my GP is very busy. While waiting for the diagnosis, I increased on intake of anti-inflammatory foods including turmeric, flaxseed, more fruits and veggies. My ESR and CRP, while elevated, were 1/2 of the median levels I’ve seen when reading studies on PMR. I think the diet may have helped.

I responded quickly and well to 15 mg Prednisone. The infra-patellar bursa w]swelling resolved only after I started on prednisone. I have started a slow taper today. My goal is to hope my body will heal itself and can get off of steroids.

@tweetypie13
You might find this study of interest. About 17% of new onset PMR patients who identified a factor attributed an injury to onset of PMR.
https://pmc.ncbi.nlm.nih.gov/articles/PMC5278275/