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frankiechi avatar

It’s back!

Polymyalgia Rheumatica (PMR) | Last Active: Oct 30 12:11pm | Replies (35)

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Profile picture for John, Volunteer Mentor @johnbishop

My first time lasted for 3 and half years and went into remission for 6 years. I'm currently in remission from the second round with PMR going on 6+ years and hoping it doesn't rear it's ugly head again. Best of luck on containing the beast!

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Replies to "My first time lasted for 3 and half years and went into remission for 6 years...."

@johnbishop
I’ve been in remission for four years, and before that, my first remission was six years. I live with the daily anxiety of wondering what I might be doing, eating, or drinking that will bring the PMR back. Too much exercise or too little, too much alcohol, bottled water or tap, too much sugar and so on. With the pains that come with old age, especially from RA, I worry all the time that the life choices I make might bring it back. I keep the worrying to myself, so my friends and family don’t think I’m neurotic, but it’s a heavy load to bear, and I never feel truly at peace. The truth is the monster lurks within and may resurface whenever it wants to.

@johnbishop does this happen for most of us suffering from PMR, a remission? Does it just naturally happen?