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Worried about my symptoms and my future

Neuropathy | Last Active: 3 hours ago | Replies (9)

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Profile picture for cheyne @cheyne

Hi,
If you had long covid chances are you have autonomic neuropathy. It and food pisoning (campylobacter) are the major causes or digestive problems. Diabetic neuropathy kills the nerve endings where autonomic ( ANS) demeylinates the nerve endings. Once the nerves are dead from diabetic neuropathy they are history but with the meylin depletion it is capable of remeylination when you are in good health. I have both and at end stage digestive ANS. It affects my glucose and blood pressure depending on the amount of food or fluid I have consumed each day. Being end stage I have to restrict the volume ingested to keep the glucose and bp at slightly high results. If I stop eating they both drop to normal but I die from lack of neutrients, which is happening anyway from not enough neutrients. Currently I'm in metabolic collapse which is the body is feeding on itself because that is all the neutrients it can find. The only solution I have found is what is called a G-J tube insertion opperation. This feed neutrients into the base of the lower stomach relieving pressure off the digestive system. You are then fed via neutrient packs and a pump according to your needs. The theory is the remeylination can then occur. It is not guaranteed to happen this way but generally that is how it goes. I'm struggling to get forward traction for a G-J tube but I have one last chance comming up in a few days. The big problem is very few medical people understand ANS when other complications are in play. For 14 years ANS has been affecting my diabetes, basically the body freaks out when food is dropped into the stomach and provides more glucose to fight what it sees as an attack on the body. As this disease takes hold it also affects your ability to cope with medications. I'm now untreatable for both diabetes and blood pressure as the side effects can be aggression and in some cases violence. It dosen't affect me but everybody around me gets a slice of hell from me. If this is what you are diagnosed with the sooner you get help the better. I was getting glucose spikes of up to 28mmol/l with bp spikes up to 225/114. That puts me well into coma territory but with these spikes the ketones never ever went above 0.4 keeping me out of a coma. I'm now getting blood clots from the inability to walk far and resorting to wheelchairs. ANS can be very invasive when it affects the meylin coating. Why does it happen, when you have long covid or a serious bout of champylobacter the bodies response is to attack the invader. But it doesn't recognise the difference between the meylin and the virus so attacks both not knowing. Then once the virus is gone it continues to attack the meylin as it has learnt this is a virus that needs to be eradicated. How the switch is flipped back again I don't know. It has never come to light with all the research I have been doing.
Anyway, act now and don't be fobbed off without answers. When you get a diagnosis you will then know what you are dealing with.
Good luck
Cheers.

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Replies to "Hi, If you had long covid chances are you have autonomic neuropathy. It and food pisoning..."

@cheyne God bless you during your struggles - to be able to help others. 🙏🏼💐✌🏼