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leeleecat91 avatar

Worried about my symptoms and my future

Neuropathy | Last Active: 3 hours ago | Replies (9)

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I have neuropathy in my feet. It started after my heart attack when I was 39. I am 42 now. My A1C is also high so I am on my way to diabetes. Nobody can explain my neuropathy at all. Just know I have had it since I came out of the coma from the heart attack. Maybe it was the lack of oxygen from my heart not beating for 36 minutes. Nobody can give me an answer and I just try to deal with it. Sometimes it is like pins and needles, other times my feet feel like they are literally on fire. Some days are hard to deal with. The best way I can describe it is, my average day feels like my feet are badly sunburned, dry, and cracking. I haven't found narrowed down what aggravates it or what alleviates it. Some days are just better than others. Hope you can find the answers you are looking for.

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Replies to "I have neuropathy in my feet. It started after my heart attack when I was 39...."

Hello @leeleecat91, I would like to add my welcome to Connect, along with @dan84, @cheyne, @seniormed, @artemis1886 and others. I'm happy to see that you have already connect with other members and have some response. Connect is a great way to learn about neuropathy and what helps. I too waited many years before trying to get a neuropathy diagnosis. I had the symptoms of numbness and some tingling but no pain. Best thing you can do is be your own advocate and learn as much as you can about the condition and what treatments are available that might help.

Welcome @dan84, You mentioned your A1C is high and you are now on your way to diabetes. I was in a similar condition in my 40s and later (now 83) and that's when my neuropathy symptoms first started. Since joining Connect and wanting to know more about my neuropathy diagnosis (idiopathic small fiber peripheral neuropathy), I learned about the metabolic syndrome which you are in if you have a high A1C and are in the pre-diabetic category or have diabetes. Here a few references if you want to learn more:
-- The metabolic syndrome – What is it and how should it be managed?
https://journals.sagepub.com/doi/full/10.1177/2047487319886404
-- The Metabolic Syndrome and Neuropathy: Therapeutic Challenges and Opportunities: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3881591/
-- Metabolic syndrome as a risk factor for neurological disorders
https://pubmed.ncbi.nlm.nih.gov/21997383/
Another site to learn more about neuropathy and possible treatments:
-- Neuropathy Resource: https://neuropathyresource.com/