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Profile picture for stinam85 @stinam85

I was diagnosed after much testing to figure out what was going on and finally confirmed through punch biopsy in 2021. A reason not found yet, so I’m in the idiopathic group.
I was given gabapentin and worked up to 900mg 3X daily. I now take 300mg as needed, 1-3 times per day. I take a magnesium complex and I would recommend looking into the different types and applying the right ones to your needs. I just recently added ALA to my supplement regiment and haven’t taken long enough to know if that works or not. I was taking Cymbalta 60mg for depression and I chose the drug because it has an on label use for nerve pain. I took this for about 6 months and it really really helped but unfortunately my body was susceptible to some of the negative side effects and I discontinued. I would recommend giving a try. I ended up with dizziness that I could not control so I discontinued. I learned pretty quickly how to well it worked for the pain once I got off of it.
Movement, self care, diet, water and liquid IV are my go tos and seem to contribute significantly in the day to day.
Avoid extreme heat or cold - heat seems to be my enemy, especially humid heat.
Keep your hands and feet moisturized and socks on.
Footwear- comfortable footwear without the over abundant cloud cushioning. I found a pair of barefoot shoes that are amazing, I even used them for hiking in the Tetons and Yellowstone and they were amazing. I didn’t get the severe pins and needles that I would normally get from my regular Merrel and Keen hiking boots.
Stay away from processed foods. They ignite inflammation and trigger flare ups.

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Replies to "I was diagnosed after much testing to figure out what was going on and finally confirmed..."

Welcome @stinam85, Thanks for sharing your neuropathy story and what has helped you manage the symptoms. I too have an idiopathic neuropathy but only have numbness and some tingling but no pain so there aren't any medications that help with that. I too have several pairs of barefoot shoes that I like around the house and neighborhood but not if I have to walk any distance. I need a tad more cushion if I have to walk longer distances. There are quite a few discussions on supplements for neuropathy if you want to scan through them - https://connect.mayoclinic.org/search/.

Are your neuropathy symptoms mostly in your feet?