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sarahlynn1960 avatar

Tobramycin inhaled side effects.

MAC & Bronchiectasis | Last Active: 4 hours ago | Replies (12)

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Profile picture for Sue, Volunteer Mentor @sueinmn

@clk1958 Let's ask someone who has a lot of experience with pseudomonas. @irenea8 can you talk about how inhaled tobramycin affects you?

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Replies to "@clk1958 Let's ask someone who has a lot of experience with pseudomonas. @irenea8 can you talk..."

@sueinmn
If you are newly diagnosed with Pseudomonas and have not had it for long then you stand a chance of eradicating it. It seems the standard protocol from most Pulmo's in that case is Cipro for 14 days followed by inhaled Toby for 2 to 3 months. The Toby does seem to work or be an important part of the treatment. So If you can tolerate the Toby it does often work in this scenario. But some people find it very harsh and hard to tolerate in terms of irritation to the airways and voice loss etc. A couple of RARE cases on this forum of kidney damage from inhaled Toby. In my case it caused decreased urine output so I stopped. It was also very harsh on my voice but there are ways around that. I stopped due to the urine output which is RARE. If you have colonized Pseudomonas then Toby is prescribed differently. You use it ongoing every other month or rotate it with Cayston (one month Toby and one month Cayston). Cayston is hard to get approved unless you have CF. Not impossible however to get approved if your Dr knows how. If you cannot tolerate Toby at all, Cayston is a good alternative. There is also Colistin which many seem to tolerate better than Toby in terms of airway irritation.