@steph01 I had surgery at the Rare Cancer Program with Dr Beaudreaux and his team. They are located at East Jefferson Hospital Metairie, La. Quite frankly, they did a surgery nobody else wanted to do. I was told inoperable by several surgeons and finally a whole tumor board before getting referred to the right guy. I had a small bowel resection 3 years ago removing 3 constrictions due to NETS. Had to have it. I had lost over 100 lbs because I couldn't eat.

Not all surgeons are equal. Not all radiologist are equal. Sometimes its a hunt to find the right help.

On the subject of biopsies. Think of a tumor as a blueberry muffin. If you stick that muffin with a needle you may or may not stick a blueberry. Same with a cancerous mass. Sometimes a nearby hot lymph node is a better target than the mass itself.