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← Return to pNET. Not sure what to do.
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Neuroendocrine Tumors (NETs) | Last Active: 2 days ago | Replies (26)
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Hi, wow this is very appreciated and I'm wishing you all the best.
I'm wondering if I an ask some questions? How old are you?
Where did you gt the surgery and would you mind sharing the name of the surgeon at Stanford? Was this robotic? I'm not sure if laparoscopic means robotic. Any other info you can provide about your tumor? The grade or stage they found out it was after surgery? Was the surgery painful and how was the recovery? Any pancreatic leakage?
Thank you.
Replies to "@kathyfujii Hi, wow this is very appreciated and I'm wishing you all the best. I'm wondering..."
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@steph01
Hi, I am 68 yrs old, I saw Dr. Brendan Visser from Stanford Cancer Center. My small tumor was diagnosed after CT, MRI, EUS biopsy, and Dotate Scan. It was stage 1 or ,2 until he discovered two tiny lesions on my liver, which made it stage 4 as it metastasized.
The laparoscopic surgery, was not an open incision, and it was robotic. It was not painful at all, and I was able to travel 2 weeks post surgery. He referred me to another Stanford Dr. Ghanouini, who performed a MRI guided RF ablation of two tiny lesions the week prior.
I believe this pancreatectomy and ablation was caught early, without chemo or any other treatment needed. I will be following up with an oncologist soon.
I highly recommend seeking second opinion at Stanford to with Dr. Visser. It is a top notch facility with state-of-the-art care and treatment with outstanding physicians.
Good luck.