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I no longer looked forward to sleep. Sleep in any amount was my enemy
Spine Health | Last Active: 9 hours ago | Replies (4)Comment receiving replies
In the interest of time I must jump ahead and give some history of the current condition and symptoms, but even this I wonder if I might reach out to the monitor @colleenyoung or @jenniferhunter to steer me in the right direction within Mayo Clinic Rochester. I have a call with Mayo Central appointment office Rochester, this morning. 10/8. It has been suggested that I might end up with a fusion of C1 to C2. I have widespread symptoms, especially disabling pain. I am currently at my most critical time, of all the past last 7 years.
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@phoenix05099 I'm sorry you are having so much trouble. Are your doctors questioning your bladder symptoms in connection to your spine issues? It sounds like they have done a lot of other related tests. I had some problems with voiding and that was caused by spinal cord compression in my neck. At this time prior to spine surgery, I was working with a physical therapist and when she aligned my spine, my bladder functioned correctly. Then when the next muscle spasms happened, it shifted my spine alignment and that caused the bone spurs from the bad disc to press into my spinal cord with greater pressure. and I had trouble emptying my bladder again. It was an intermittent problem depending on my spine alignment. Spinal cord compression is known to cause incontinence and bladder and bowel dysfunction.
It may be worth asking your doctors if there is any movement in the alignment of your vertebrae and if it may be connected to your bladder symptoms. You probably should tell them you need the hard collar to sleep if it is needed for preventing pain. The spine may change positions when laying down or standing and for some patients, if there is any instability, some vertebrae may slide forward or back or sideways. This is something to question in case your doctors haven't considered it.
As for Mayo, my experience there was surgery with Dr. Jeremy Fogelson. He is also a deformity expert. You can request that he review your case if you at the beginning of your request. Mayo doctors will need to refer you to whomever is best matched to your condition.
How did your phone call go with the appointment office?