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DiscussionAny one with Neuroendocrine tumors getting the shot once a month?
Neuroendocrine Tumors (NETs) | Last Active: 1 hour ago | Replies (268)Comment receiving replies
Replies to "@hopeful33250 Thank you Teresa, thats a big help.. A"
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@sturns
Bummer on the pain factor. I had PRRT ( 4 rounds-2 months apart) 3 years ago - did not see any noticeable impact on decreasing size or number of tumors. Ended up having surgery and ablation procedures a year later- removing/ ablating 40+ lesions in my liver.
Have been on Affinitor/ Everolimus ( daily chemo pill) for past 6 months- having positive impact- no new tumors, no addl spreading and some modest reduction in size of some tumors. Managing side effects-but fortunate ( and optimistic) about continued treatment
Was initially diagnosed w NETs-11 years ago - started in Colon/ small intestines-spread to liver and bones ( typical) Mayo Oncology team has been amazing - # of different treatments over the years -
Stay positive and strong !