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Recovering from ileocecectomy surgery for NETs at Mayo
Neuroendocrine Tumors (NETs) | Last Active: 7 hours ago | Replies (16)Comment receiving replies
@dadcue I did not have the gall bladder removed but had a lot of trepidation around having the ileocecal valve removed and how that would change my life. And some around having an open surgery as well as general anesthesia. I'm a senior and I have some risk factors for that.
They were very careful about clearing me for surgery, It didnt happen until about 10 days befirehand, Also I live at 7K ft and am still being tested/treated to see if it's okay for me to be there without O2 even without being post-op, so I needed to find a place here in Phx to heal for 4 wks. I'm divorced, so no mate to take care of me. Very stressful. Lots of scary images went through my mind as I tried to figure out how I might weather it. Sometimes I couldn't imagine I was going to subject myself to this. It took a little time to adjust to the idea and it never got really comfortable, just not horrifying.
I'm glad to hear you're close to seeing a NET doc! What are your concerns about gallbladder removal and the overall surgery, as well as not having the surgery?
Replies to "@dadcue I did not have the gall bladder removed but had a lot of trepidation around..."
@taly
Had my gallbladder taken out during my surgery. Been on multiple treatments since then- have not seen any negative impact
Btw. I live at 8000 feet -half the year ( also a senior!)-think the clean mountain air helps!!
Good luck! Stay positive
For anyone reading this follow-up discussion, you may also be interested in this previous discussion:
- How to Prepare for Life without an Ileocecal Valve https://connect.mayoclinic.org/discussion/how-to-prepare-for-life-without-an-ileocecal-valve/
@taly, I appreciate the update post surgery. As you recover, would you mind sharing any tips you might have for someone preparing for an ileocecectomy? What do you wish you had known?
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@taly
I'm a retired surgical nurse. It isn't too difficult for me to dream up all kinds of things that might not go as planned. The uncomplicated cases are easy to forget. I still have vivid memories of some surgeries that didn't go as expected.
I have had a few surgeries that had mostly good outcomes but there were some surprises. I have some senior issues too.
I don't have many symptoms. My NETs are an incidental finding. If I had more symptoms maybe I would be more motivated for surgery. For now, they can do all the scans and labs they want and I will get my Lanreotide injections.