← Return to Radiation cystitis years after prostate cancer — recurrent blood clots

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My cystitis hit me 18 months after my radiation treatment, which was 6 months after my prostate removal.
I passed clots and blood for the next 6 years. Many trips to the ER.
I had a Supra Public catheter for 10 months, the first month went to the ER 3 times for clogs.
Having to change it monthly was a challenge at times, but eventually it did help. I also did the HBOT thing for 40 treatments, it pretty much stopped the bleeding but that’s about all except messing up my vision.
I spent the next 3 years psyching myself up to go ahead with the urostomy surgery only to find out I developed a fistula between my bladder and lower intestines. Now it appears I am looking at wearing 2 bags instead of just the one.
However you decide to go, don’t put it off. Good luck with it all and if anyone has insight on the dual bag lifestyle I would like to hear from you

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Replies to "My cystitis hit me 18 months after my radiation treatment, which was 6 months after my..."

@ransan, welcome. I invite you to join the discussions in the Ostomy Support Group https://connect.mayoclinic.org/group/ostomy/

You might start here:
- What has worked for managing your urinary diversion? Share your tips! https://connect.mayoclinic.org/discussion/what-has-worked-for-managing-your-urinary-diversion-share-your-tips/