I'm really sorry to hear of the pain, @sturns. Since your medical oncologist suggested that it might have to do with the "tumors running into nerves," you might consider what can be done to reduce the size of the tumors. As many in our group have found that PRRT has reduced the size of their tumors, it might be a consideration. How much discussion have you had with your oncologist regarding PRRT?

As @dbamos1945 mentioned, we all react differently to treatments; however, PRRT might be worth a try.

I look forward to hearing from you. Will you keep updating our group as you progress towards a decision?