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Has anyone refused treatment after being diagnosed?

Bladder Cancer | Last Active: Oct 11 3:00pm | Replies (24)

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Profile picture for mikf @mikf

Everyone here has been through the trauma of being diagnosed with cancer, and understands the stress you are going through and has no wish to add to that. To answer your question more directly, I had TURBT on advice of my urologist within days of being diagnosed, but biopsy and visual examination made it clear the cancer was already invasive and I was told in no uncertain terms that I should put my affairs in order, and have immediate radical treatment or my outlook was poor.
So I had a radical cystectomy as soon as I had recovered from TURBT, within 3 weeks because my urologist - quite rightly - said the clock was ticking and time mattered. I was advised by him not to have chemo, as at the time as it had a poor track record, and none of his previous chemo patients had survived chemo . I understand chemo for BC is now much improved, and standard treatment supported by most urologists and oncologists.
But rapid and radical action by my brilliant surgeon/ urologist proved to be enough and I have now survived more than 28 years. The surgery and recovery, and some of the side effects was no picnic, but I thank God and my surgeon for it, and the rapid reaction, every day
So treatment choice matters, time matters, and the individual urologist matters. I am not a urologist, so take real informed advice, but knowing your cancer is already muscle wall invasive, may mean TURBT is already not the best option.
But whatever, don’t procrastinate, because there are no guarantees, but time really does matter.

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Replies to "Everyone here has been through the trauma of being diagnosed with cancer, and understands the stress..."

@mikf Thank you for telling your story.

Yes, getting a cancer diagnosis was a bit stressful for the first few weeks, until I slowed down and really processed it. Until I made the decision to forgo having the TURBT surgery and accepting it, I really was not able to focus on first healing my body the very best I could. That was something I could control. That included stopping smoking, changing my diet, etc. I was extremely disciplined (still am). And the best part-- I stopped being stressed out! I know there is a very strong mind-body connection. High stress, hopelessness, and severe depression can negatively affect overall well-being, adherence to care, and quality of life.

I'm 65, single, retired and happy and content with my lifestyle. I've lived a good life. I also have the support of (most of) the people in my life that matter to me. This is my journey, and my choice to do this on my terms.

Good luck with your journey.