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Any one with Neuroendocrine tumors getting the shot once a month?
Neuroendocrine Tumors (NETs) | Last Active: 1 hour ago | Replies (268)Comment receiving replies
i,ve had pnet for 7 years. tried sanostatin and a couple of others not much treatment. i am thinking about PRRT, what are your thoughts abot that? and the pain i have is off he charts. it wraps aroung the upper abs and over liver which is coverered with small tumors and lesions. the pain also wraps around the back, upper thorassic, even with strnum (sp) , one or the other and will last 2-4 days and its a 9 easy and that with taking pain medication which i hate to take..any suggestions? this is first time reaching out, and i havent had anyone to talk to. just moved to be closer to my sister but i just sit in an apartment and stare. i am at the end of my rope. Anthony
Replies to "i,ve had pnet for 7 years. tried sanostatin and a couple of others not much treatment...."
@sturns I think prrt will be a very good decision as it worked very well for me. It cut back the size of my tumors by about 20% and have been stable for 3 years now. The side affects of the cancer also cut back dramatically.
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@sturns
Hello Anthony,
We have many members on Connect who have had success with PRRT treatments. Here is a list of discussions about PRRT: https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/
In these groups, you will meet members such as @vinnie694, @dbamos1945, and @rkklinger, among others.
Are you currently seeing a NET specialist?