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steph01 avatar

pNET. Not sure what to do.

Neuroendocrine Tumors (NETs) | Last Active: 2 days ago | Replies (26)

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Profile picture for frogsong @frogsong

I personally had a biopsy and it was inconclusive … ultimately waited 6mos and tumor had grown and I had 6 of 8 lymph nodes positive (no show on dotatate) as well as perineural and vascular invasion… Every case is different and my case is not, was not, like the probable majority that grow slowly. My point to consider, biopsies are not always reliable when trying to accurately diagnosis a very small lesion…

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Replies to "I personally had a biopsy and it was inconclusive … ultimately waited 6mos and tumor had..."

@frogsong

Hi, I'm sorry to hear your biopsy was inconclusive and you went through all of that. Have you had surgery or treatment and how's that going?

@frogsong
Also, as cells morph and spread to nodes and other locations they can have different ki67