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Living Long-Term at Stage 4 Kidney Disease

Kidney Conditions | Last Active: 27 minutes ago | Replies (23)

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Profile picture for berns3 @berns3

Newly diagnosed as diabetic and stage 4 ckd. The diets for each cancel the other out, so I have almost no options for safe foods to eat. I know ckd is terminal so it will kill me, but it looks like my diet is going to be so restricted as to be nearly nothing. I am feeling hopeless.

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Replies to "Newly diagnosed as diabetic and stage 4 ckd. The diets for each cancel the other out,..."

@berns3 Hi, many people, especially elders, have multiple conditions, so it is a balancing act…i am watching both sugar and kidney #s and find that there are plenty of foods to eat, especially veggies and fruits- and many simple ways to prepare them…my kidney situation and sugar #s both improved by dietary care (along with hydration and mild exercises). I go low on pasta/bread and eat more quinoa….i go light on protein but have some everyday for overall health—and love some plant-based proteins like tofu (with veggies)…i allow for truly tiny treats here and there— and have been able to get better blood #s. There’s a lot of info out there to sort through…don’t let online hustlers tell you they have miracles—we can do better without them.

@berns3 Welcome to Mayo Clinic Connect! As @nycmusic mentioned, combining food plans to cover multiple health situations is a challenge, but doable. It takes time and effort on your part.

And, sorry, I don't agree with you that ckd is terminal. What has led you to that thought?
Ginger

@berns3 I’ve been diabetic for 51 years. The last time I posted in this discussion was in 2024 and I had Stage 4 CKD at that time. I have NOT found that “the diets for each (condition) cancel the other out”. Eating for Diabetes is about managing the carbohydrates consumed. Medications &/or insulin can help with that. Renal nutrition is about “eating for the labs” as my nephrologist says. This means avoiding salt/sodium; limiting protein, especially red meat; monitoring calcium, phosphorus, potassium and sometimes oxalates. Stay hydrated well. Your provider can tell you what amount is right for you.
All of this isn’t easy but it is necessary. I was Stage 4 two years ago and on the kidney transplant list / inactive (not quite bad enough for active listing). Now I’m stage 3 and have been removed from the transplant list. Better kidney health is possible. Don’t lose hope.