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Anyone diagnosed with Aggressive Variant Prostate Carcinoma (AVPC)?
Prostate Cancer | Last Active: Oct 4 2:26pm | Replies (21)Comment receiving replies
I am so sorry to hear this Mpj : (((, you really can not get a break from this stupid cancer that went berserk *ughhhhh !!! Somebody mentioned this trial and went to check it - it is for metastatic CR cancer :
https://ascopubs.org/doi/10.1200/JCO.2026.44.7_suppl.17
I do not know if any center near you is accepting patients but I think it might be worth exploring .
In the meantime I am sending you hugs and famous "healing vibes" and I know that you know this, but just in case , nobody of us is born with expiration day barcode printed on our forehead , so all those "predictions" are some "averages" that they got retrospectively and not in "real time". We saw a great deal of patients here that got a "2-5" years but are still here 8 or more years later and not even close to being done with their options.
When is your next infusion ?
Replies to "@mjp0512 I am so sorry to hear this Mpj : (((, you really can not get..."
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@surftohealth88 - Hi ya surf! Waving in those healing vibes, thanks! and thanks for the link.
Yea...I don't pay much attention to those expiration dates. Urology said 1-2 years too. That was a year and a half ago, so oncology's 1-2 years last month is actually an extension. I'm just concerned with slowing progression down while I can still walk.
Next infusion (or HELLWEEK Day 1 🤮) is Wednesday providing Tues bloodwork comes back OK.
Hey, how's Mr. surf doing?